Online Resources

We are providing these links to related resources as a service to our users. We are not responsible for the information at the linked sites and do not endorse any products or services found there.

  • American Parkinson Disease Association (APDA):
    APDA focuses its energies on research, patient support, education and raising public awareness of the disease.

  • Care4Dystonia:
    A nonprofit organization committed to dystonia through balanced programs of patient care initiatives, awareness, collaboration and education.

  • Dystonia Medical Research Foundation:
    The mission of the Dystonia Medical Research Foundation is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well-being of affected individuals and families.

  • International Essential Tremor Foundation (IEFT):
    IETF was created to provide information, services and support to individuals and families affected by essential tremor (ET).

  • International RadioSurgery Association:
    IRSA is dedicated to providing educational information on stereotactic radiosurgery to governments, regulatory agencies, insurers and referring physicians.
  • International Rett Syndrome Association:
    The mission of the IRSA is to support and encourage research to determine the cause, treatment and cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.

  • Michael J. Fox Foundation for Parkinson's Research:
    The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.

  • National Parkinson Foundation (NPF)
    The NPF is the largest organization serving persons affected by Parkinson disease throughout the world.

  • National Spasmodic Torticollis Association (NSTA):
    The NSTA is a nonprofit organization dedicated to providing information and support to ST patients, educating the public and medical community about ST, advocating for the rights of those with ST and promoting research on ST.

  • Parkinson's Action Network (PAN):
    Through education and interaction with the Parkinson's community, scientists, policy and opinion leaders, and the public at large, PAN advocates for increased and accelerated investment of public resources to ease the burden and bring a cure to the million Americans who suffer from Parkinson's.

  • Parkinson's Disease Foundation:
    The Parkinson's Disease Foundation (PDF) is a national nonprofit organization devoted to education, advocacy, and the funding of research.

  • Parkinson's Hope:
    A variety of information and resources to help you learn more about Parkinson's disease and how to manage its symptoms.

  • Parkinson Society Canada:
    Parkinson Society Canada is a not for profit, national charitable organization. The Society raises money through corporate sponsorships, public donations, and planned gifts.

  • Spasmodic Torticollis Dystonia:
    Help people with dystonia become improved human beings; provide them with hope for the future; and help them re-adapt into society.

  • Tardive Dyskinesia Center:
    Provides educational information on tardive dyskinesia, a movement disorder caused by the medication Reglan. The symptoms of Tardive Dyskinesia mimic those of Parkinson's disease and continue even after the drug is no longer used. This website features the most up-to-date information on TD, its causes and all known treatment options.

  • Transverse Myelitis Association:
    The Transverse Myelitis Association facilitates support and networking opportunities among families; provides educational information; functions as a clearinghouse for articles and research literature; and investigates, advocates for and supports research and innovative treatment efforts.

  • We Move:
    This Web site is a comprehensive resource for movement disorder information and a hub of movement disorder activities on the Web.
  • Wilson's Disease Association International:
    The Wilson's Disease Association (WDA) is an all-volunteer organization striving to promote the well-being of patients with Wilson's disease and their families and friends.

  • World Parkinson Disease Association:
    Some of the goals of the WPDA are to improve the quality of life of Parkinson's patients worldwide and to broaden public awareness and contribute to the development and sharing of greater knowledge and information about Parkinson's disease.

For more information about the University Physicians Consultation and Referral Service, please call 1-800-492-5538 (patients) or 1-800-373-4111 (physicians).

This page was last updated: June 12, 2013

         
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